lupus :: essays research papers

Systemic Lupus Erythematosus (SLE) is a chronic, usually life-long, potentially fatal autoimmune disease characterized by unpredictable exacerbations and remissions with protean clinical manifestations. In SLE there is a predilection for clinical involvement of the joints, skin, kidney, brain, serosa, lug, heart and gastrointestinal tract. Women and minorities are disproportionately affected and SLE is most common in women of child-bearing age although it has ben reported in both extremes of life (e.g. diagnosed in infants and in the tenth decade of life). The prevalence in the Unites States had been estimated as approximately 500,000 but a recent telephone survey commissioned by the Lupus Foundation of America suggested a prevalence of as many as 2,000,000. A recent study identified a prevalence of 500 per 100,000 (1:200) in women residing in the area surrounding Birmingham, Alabama. The prognosis for patients with SLE has greatly improved over the last few decades with at least 80-90% of all patients surviving ten years. Thereafter life expectancy approximates that of age matched controls. This improvement reflects the general advancements in health care (i.e. dialysis, antibiotics, antihypertensives, newer immunosuppressives with more favorable efficacy to toxicity ration) but also the specialized care available for patients with SLE. SLE is a complex disorder affecting a predominately young population and shares similarities with HIV infection as regards the propensity for multiple organ involvement, potentially life-threatening episodes, and need for sophisticated monitoring. Patients with SLE are appropriate for a Center of Excellence since medical care by experienced clinicians with access to state of the art diagnostic and therapeutic measures will result in improved outcomes and the most cost-effective utilization of resources. Expert care of patients with SLE will lead to fewer hospitalizations secondary to uncontrolled disease exacerbation, less severe renal disease with fewer patients experiencing end stage renal disease requiring chronic dialysis, fewer episodes of avascular necrosis requiring total joint replacement, and less severe osteoporosis and fractures.

Lobbying in the European Union

The European Commission has four main rules: 1. Proposing new legislations to the Parliament and the Court. It is important that these proposals are aimed to defend the interest of the Union and its citizens, and not only for specific countries or industries. 2. It is responsible for supervising the budget under the watchful eye of the Court. It also has to manage the policies which are adopted by the Parliament and Council. 3. They have to make sure that the law in every European country is properly applied. 4. Representing the EU on the international stage. It makes sure that the member states can speak with one voice (Europa.eu, 2009). Explain why the system of Qualified Majority Voting (QMV) in the Council of Ministers has become more important in the decision-making process Assuming a measure is opposed by Britain, Italy and Ireland, which together wield 23 votes, these have more power than smaller countries. Since a blocking majority consists of 26 votes, the power of Denmark or Finland (each with three votes) to determine the Council's decision on the measure becomes infinitely greater than Luxembourg's (with only two votes). A small country can exert enormous leverage on its larger colleagues when it can use its votes to transform an existing coalition into a qualified majority or blocking majority (Peterson and Bomberg, 1999, p.51-52). Why and how has the role of the European Parliament become more significant in the decision-making process The European Parliament works aside the Council of Ministers to make decisions, therefore Parliament amendments are now influenced by the European Parliament in the decision-making process. It is more involved under two procedures, co-decision and cooperation with the Council of Ministers. This procedure was introduced by the EC Treaty of Maastricht and was largely expanded by the Amsterdam and Nice alteration of the TEC. Now the procedure is applied to practically all important matters (Europedia, 2009). With the cooperation procedure, introduced in the SEA, the Council becomes more influenced. If the EP has different opinions to what the Council proposes in a specific legislation, further discussion and modifications can be undertaken. Today this procedure will only be applied in limited areas of economic and monetary unions. Under the co-decision procedure now fall the vast majority of EU legislations that were introduced by the Maastricht, Amsterdam and Nice Treaties. In this procedure the EP has more power to veto against some decisions from the Council. If they can not agree with each other, the legislation will fail to exist (Bomberg E. and Stubb A., 2005, p. 59). To what extent will changes to decision making procedures outline in the Lisbon Treaty (2007) improve the legislation process within the EU Firstly, it generalises the qualified majority voting in a normal legislative process. Secondly, the weight of the votes will change in the Council and significantly simplify the system of qualified majority. From the 1st of November 2014, the qualified majority has to be at least 55 % of the members of the Council, including a minimum of fifteen of them and representing Member States involving a minimum of 65 % of the inhabitants of the Union. A blocking majority must have a minimum of four Council members, and the qualified majority will be reached. The new voting system values the fairness of Member States as each one has one vote in respect of the first decisive factor and the second criteria is the population size of a country. The third criteria which must be noted is that 15 Member States in support of the proposal – is unnecessary (Europedia, 2009). Current decisions about roaming fees and the services directive demonstrate how the European Parliament's membership guides take decisions, which are in the interest of the European citizens. Henceforward, the European Parliament will have the same power as the Council of Ministers in many areas. Regarding the agricultural policy, the Parliament will be able to contribute to it. The EP will therefore take part in all aspects of the EU budget. The national Parliament will play a role prior to the acceptance of EU legislation and will be adept to force the Commission to modify draft EU-legislations. It will be a milestone to bringing the EU nearer to its citizens (TheEuros, 2007). In what ways do lobbying groups contribute to the policy process in the EU and why are they significant for business In 2008, there were 15,000 lobbyists and 2,500 lobbying organisations in Brussels. In the EU, the Lobbyist usually drops into one of three major groups: industry associations, regional representations and non-governmental organisations / interest groups. Interest groups and industry associations focus on influencing decision-making processes for the benefit of their members, while also gathering and disseminating useful information. In distinction, regional lobby groups stand for regional and local authorities within EU Member States, they do not focus on direct lobbying, but on networking, informing and marketing their regions all the way through the EU machinery (Stevenson, 2008, p.1). One of the most important issues in front of interests groups is the hanging balance of power between European Institutions. Enlargement of qualified majority voting in the Council take the veto power from Member States in some economic areas, the co-decision process gave the European Parliament a bigger role in decision-making and the power to reject legislation that the Council favours. Interest groups style alliances in order to give the issue a true European dimension and perspective. The EU today manages important policies such as the Common Agriculture Policy, telecommunication, the negotiation in the World Trade Organisation, food safety, public health and transport. Business groups account for almost two-thirds of all Eurogroups (Lehmann, 2003, p.5-21). Lobbying is significant for the business, because the firms can influence on the government's decisions. Levi Strauss & Co. for example, relies on Guatemala for materials such as textiles. In 2001, the U.S. government denied Guatemala duty-free status for its imports due to the Latin America government's decision to adequately implement labor laws. This would have increased Levi Strauss's costs, so it had a clear business interest in dominating, â€Å"Rather than lobby the U.S. government to retain Guatemala's preferential trade status† the author writes, Levi's choose to attack the cause of the problem: the Guatemala's lack of labour laws. The result: Guatemala put into operation stronger labor laws as a result it continues to have protected trade status with the United States (Is ‘Lobbying for Good' CSR's Missing Link?, 2009).

Social Networks And The Internet - 2017 Words

Social networks and the use of them are becoming increasingly common in today’s globalizing world. Facebook, Instagram, Twitter, Tumblr and other social media networks have become fixtures in our culture and have become a part of the lives of its everyday users. The Internet, in part, has allowed social media networks to establish a way to transfer, store, and share private information about those that use it. This information can shared with other corporations and governments which can then be used to track, monitor, and create a perfect agent of the user. The private information shared can typically be done without knowledge of the user, but with the consent given under the â€Å"terms of service agreement† on the initial sign up. Privacy†¦show more content†¦In this ever evolving technological world, social networks and the laws surrounding them are extensively out of date. An article published by Duke Law Technology Review, published in 2014, entitled, â⠂¬Å"Reasonable Expectations of Privacy Settings: Social Media and the Stored Communications Act† exemplifies the essential need of additional and modernized laws. The article refers to the specific regulation known as the Stored Communications Act passed by Congress in 1986. The article states the goal of the (CSA) is â€Å"to provide additional protections for individuals’ private communications content held in electronic storage by third parties† (Borchert, Pinguelo and Thaw 36-37). The difficulty with this is that minimal updates have been made to this law since its passing nearly 30 years ago. Additionally, the law has â€Å"†¦language specific to the technology of 1986, courts today have struggled to apply the SCA consistently with regard to similar private content sent using different technologies† (Borchert, Pinguelo and Thaw 38-39). What is more troublesome is that today’s technology can no longer correlated to the technology of 1986. F urther arguments towards stricter and enhanced laws is furthered pressed in the article when the original intent of â€Å"SCA† was to be the framework of an ever evolving protections for individual’s privacy rights with third parties. This regrettably